I am so glad that there are ways to vent to express my feelings both good and bad about what it is and has been like to live with someone who has chronic pain. It is NOT a picnic though sadly there are some in my family who do think that things are that easy. The pain is NOT in the other person's head far from it and if it only it were that simple. Not being able to go out and have a semi normal social life is frustrating at times. Going to even something as simple as a concert where yes you can spend time standing up means probably leaving early. Eating out is a no go. Having a good night's sleep is not always guaranteed either since if there is a lot of tossing and turning forget it. That is just a scratch of the surface of this new path that is my life.
A whole other facet of this situation is sitting back knowing that you are unable to help the one you love in some of the ways you want to help most importantly with all the money it takes to have even access to the most basic care for the pain to even give the chance of some type of comfort even for a very short period of time. Even with a household working 2 jobs and even with relatively decent insurance comparative to some it is still a huge upward battle to even keep things on an even keel not to mention the cost of the medicine itself.
I really wish sometimes that some of the same people who criticize and judge our situation had the chance to live it for even an hour to see what a challenge it can be. It is not all in your head. It is not all as easy to fix as you think. And beyond that how can you fix it when the people who are supposed to be the experts keep demanding more money than you have ? I understand they need to get paid they are in business after all but whatever happened to the idea of compassion and care rather than worrying about profit especially when we are talking about the ability for someone to have a halfway "normal" life ?